If you have been trying to receive benefits for IHSS for your child with special needs like autism or Down syndrome, a denial can be stressful. As a parent, you need financial help to take care of your child who needs supervision 24 hours a day. You’ve had to cut your hours or you can’t work at all because you have to stay home.
Taking care of a child with special needs is a round-the-clock job with few breaks. You have a tendency to put most of your energy into your child’s well-being, while your own needs take second place…or last place.
Helplessness. Frustration. Sadness. They’re all emotions you’re probably more acquainted with than you like to think about. After first dealing with your child with autism’s diagnosis, your life has been a roller-coaster. What’s more difficult is when a close family member struggles to understand your situation and what your child is going through. It’s one thing if it is a stranger in the grocery store, but when it is someone close to you, it’s truly heartbreaking.
Parenting by yourself is difficult enough, and when your child has special needs, including autism, Down syndrome and cerebral palsy, you are challenged even further. The struggles seem to double, and if you don’t have support from the other parent, you’re on your own to manage the care of your child all alone.
It’s difficult to say how you might feel when the suspicion starts to creep up that your son or daughter might have a disability. For some parents, it’s absolutely heartbreaking. For others, it’s actually a relief. However you feel about it, there’s no question that the stage between questioning whether your child is Autistic and getting a diagnosis is a big one.